tag:blogger.com,1999:blog-6296669137299786155.post1246927868803754270..comments2023-07-20T05:30:32.466-07:00Comments on In My Humble Opinion: Dying In AmericaJordan Grumethttp://www.blogger.com/profile/12566078305685946261noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-6296669137299786155.post-60662611905270498352012-05-10T09:54:36.224-07:002012-05-10T09:54:36.224-07:00I am Victor, MD, IFCAP, Clinical Pathology/Laborat...I am Victor, MD, IFCAP, Clinical Pathology/Laboratory Medicine, Salvador City, BA, Brazil.<br /><br />Dying in South America is at least as flawed as in North America!.. I have heard many such complaits:<br /><br />- Why is it that my son/daugheer has Sicle Cell disease (or other such preventable inherited disease) and will suffer from it for all his/her life? Couldn't the physicians preview / avoid it? Cure it somehow?<br />- Why is it that my terminally ill mother/father/grandmother/grandfather must die home? Isn't it better that he/she stays at hospital (where some further futile treatments can be administered, and he/she can be subject to Hospital Infection)?<br />- Can't the physicians prolong my (brain dead) coma relative's life? Isn't there any hope he/she will come back? dosen't he/she hear when I talk/ sing to him/her?<br /><br />- There are questions and questions....<br />- We physicians don't have all answers... who's supposed to have? The Laywers? The midia? The parents??<br /><br /><br />- We are more than 7 Billion Humans in the globe. Many of those severely ill. Many of those terminally ill. Many of tose in need of intensive care. Somny dy of simple hunger.<br />- Each day a hopelessly dead person is kept in ICU might mean one more day / hope to someone else in need...<br /><br />- Again, who shall decide??<br />Which case is "Orthotanasia"? "Euthanasia"? Plain murder?<br /><br />In short, It sucks!...Hermes Trismegistushttps://www.blogger.com/profile/01341607616586506819noreply@blogger.comtag:blogger.com,1999:blog-6296669137299786155.post-35945049426422546122012-05-08T15:37:32.984-07:002012-05-08T15:37:32.984-07:00After finding out our 15 year old had a mitochondr...After finding out our 15 year old had a mitochondrial depletion syndrome(poor health since birth 4 different diagnosis's), we wonder if that day will come where a Dr. will tell us to count her days. Mitochondrial depletions are bad news.<br /><br />We had a rough winter with her this year, and the look of pity in her Drs. eyes was the most awful thing we have ever faced. I won't forget that look- I love the Dr. and trust that Dr. still..<br /><br />Our solution- we found a few Drs. who were real, but hopeful- who cheered us on to help in the care of our daughter.<br /><br />Today, at 17 she has beaten incredible odds- we found the answers to help her from the Drs. who had hope. She is up and moving. Eating- her blood work looks great.<br /><br />Now, we wonder about the day our Hopeful Drs. will have to tell us to count the days.Dianehttps://www.blogger.com/profile/01017207805622932780noreply@blogger.com