We were intimate.
As intimate as a doctor and patient can become. He had long outlived his wife and there were no children, no family, just friends. When he first came to me he was lively and active, but the years took their toll. Our visits became more regular. Every six months. Then every three.
His memory started to slip. Occasionally he would look at me suspiciously when something went wrong. His mind no longer able to wrap around the intricacies of medical care, he grasped at what was left. If he forgot to pick up his prescription from the pharmacy it somehow became my fault for not calling it in. Like family members do, we had our ups and downs.
But every time I walked into his hospital room after one mishap or another, he always looked relieved and his lips would curve into a giant grin. The last such occasion, he had had a stroke. Although his limbs were working well, the muscles of his throat had been afflicted. Each time he tried to eat he would choke and sputter.
His stay in the nursing home was disastrous. His weight plummeted and he lost interest in living. We had long conversations about what could be done. Although I hated the idea of a feeding tube, this simple surgery would bypass the problem and allow him to live comfortably. It all made such great sense except that he wanted nothing to do with it. He was ninety years old and didn't want a tube sticking out of his body. He was ready.
I consulted hospice and we arranged his discharge. A week before leaving he presented me with a neatly wrapped box. I opened it to find his favorite bolo tie. He wore it often with a short sleeve button down shirt and a cowboy hat. He wanted me to have it. I accepted it reluctantly, full of pride and yet mortified at the idea of actually wearing it.
I saw him a few more times in the nursing home before he left. Each time his disappointment was clear. He wondered why I wasn't wearing his tie. And the truth is, I have no rational explanation for my actions. It clearly would have looked ridiculous on me, but I could have put it on before entering the room and taken it off after leaving.
Decisions don't always make sense. It's like that when your intimate with people. You periodically disappoint them. You can't always explain why.
He returned home, and died a week later. From time to time I come across his bolo tie when rummaging through my drawers. When this happens, I feel such longing and also a bit of shame.
Its not that he died, or that my medical care was sub par. We were both quite comfortable with his decision. It's the fact that I could have done something so simple, so straightforward, to make him happy. And inexplicably, I didn't.
I have become fairly comfortable with the premise that occasionally being a human being exposes my shortcomings as a doctor.
It devastates me, however, that sometimes doctoring reveals my failings as a human being.
2 comments:
In this instance, Jordan, you did not fail as a human being or fail this patient; of this, there is no doubt in my mind.
As much of a humanitarian and patient advocate as you are, and as profoundly and prophetically eloquent as your ability to relate your experiences via this blog is, I could not help but wonder, as I read this post, whether you became paralyzed by the intensity of this patient's gift because it touched you so deeply and because you identified the bolo as representative of the patient, and as such, you wearing it would somehow diminish him as a person and invalidate his existence.
You need not fear. He knew and still knows how you feel. When you think of him, you are revisiting your feelings about him and those feelings did not and do not go one way.
O.P.W.
Please don't be. Its great to see that a doctor can admit this. Thank you for being human. I've seen the damage and experienced it personally from doctors who thought they weren't. Give me a human being any day. They'll help me, but someone who isn't won't.
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